by Lia Pas
This embroidery, which is part of the SK Arts Board’s permanent collection, depicts “sensory overload… [and] the complexity & insistence of these neurological symptoms.”
Many ME patients have a disabling hypersensitivity to light, sound, touch, taste, temperature and/or other sensory input. Lia explains, “My main hypersensitivity is hyperacusis, a sensitivity to sound and vibration.” It’s a particularly cruel symptom for a someone who was active as a composer/librettist and performer before developing post-viral ME.
Nowadays, the wrong trigger sounds – from an idling vehicle to an air conditioner – can cause Lia pain not just in her ears, but throughout her whole body. She says, “I can end up with myalgia*, tension headaches, and migraines after exposure and it can take days to recover depending on the volume, timbre, and length of the trigger sound.
“It’s hard to explain to someone just how disabling sound sensitivity can be.”
*myalgia: muscle pain
Did you know? You can enter to win a prize pack of prints and postcards featuring the embroidery creations of Lia Pas in our Benefit + Awareness Month prize draw until June 1, 2023!
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