Benefit + Awareness

Raising voices in support of charity

MUSIC • VIDEOS • ART • PRIZES • SHOPPING
Discover our 10th annual event May 1-June 1, 2022

Ever since Opera Mariposa’s inception, we’ve held an annual Benefit + Awareness event to raise funds and awareness for chronic neuro-immune diseases. Through the generosity of our community partners and people like you, we’re now in our tenth year – and in 2022, we’re honouring the May 12th International Awareness Day for Myalgic Encephalomyelitis and Fibromyalgia (ME & FM) with an entire month of programming.

Be sure to join us for music, videos, art, shopping and over $3,500 in prizes. 100% of the proceeds will benefit the ME | FM Society of BC – and this year, your support will be tripled thanks to matching donations by generous sponsors. This means that for every $10 you give, the charity gets $30!

Download a PDF about the charitable cause here.

What is the ME | FM Society of BC?
The ME | FM Society of BC is a registered Canadian charity working to support and advocate for people living with Myalgic Encephalomyelitis (ME) and/or Fibromyalgia (FM). They work to educate the healthcare community, government about ME and FM; provide information and resources for patients and their families; champion issues that impact the ME and FM community; and promote state-of-the-art medical research, testing, diagnosis and treatments. They are also dedicated to building an inclusive, accessible organization that creates opportunities for the participation of patients, carers and family members at every level. | www.mefm.bc.ca

What is Myalgic Encephalomyelitis?

Myalgic Encephalomyelitis (ME)* is a complex chronic disease characterized by debilitating exhaustion unrelieved by sleep, as well as exacerbations or “flares” of its many symptoms after even minor physical or mental activity. Impacting many body systems, ME can cause everything from chronic pain, cardiac issues and immune problems to neurological symptoms like movement disorders, light sensitivity and intermittent dyslexia. “Mild” ME typically reduces function by at least 50%, while studies report that moderate to severe cases can resemble living with heart failure or end-stage cancer for decades. It has the lowest quality-of-life score of all common diseases, and prior to the pandemic, affected over half a million Canadians and an estimated 17-24 million people worldwide. Despite this, ME is seldom taught in medical schools, and an estimated 90% of patients aren’t even diagnosed. Many cases have a post-viral onset, and the illness can be triggered by coronaviruses such as SARS, MERS…and unfortunately, COVID-19. | learn more

*also referred to as ME/CFS, Chronic Fatigue Syndrome or SEID

What is Fibromyalgia?
Fibromyalgia (FM) is a complex chronic illness that affects over half a million Canadians and around 3-6% of people worldwide. Characterized by widespread burning pain and fatigue unrelieved by sleep, it can also cause other debilitating symptoms including brain fog, irregular heartbeat, severe sleep problems and digestive issues. As with ME, symptoms can vary not just from person to person but from day to day, and some patients may even appear superficially healthy. Nevertheless, fibromyalgic pain can be unrelenting, and the UK’s National Health Service ranks it as one of the 20 most painful health conditions. The illness is also associated with impaired joints, fascia and other connective tissues – an issue shared with Ehlers-Danlos syndrome (EDS), a genetic disorder with which it can co-occur. In fact, fibromyalgia can occur alongside several other serious conditions, including irritable bowel syndromemigraines and autoimmune diseases, and the overlapping symptoms can affect every aspect of a person’s daily life. | learn more

YouTube video thumbnail of Chinese-Canadian performer Jacqueline Ko with downcast eyes, holding a red rose against an artistic purple background. Cursive text reads, Chi il bel sogno di Doretta.

A new music video

May 31, 2022, 12pm PDT / 3pm EDT

Join Opera Mariposa for the world premiere of Chi il bel sogno di Doretta, directed by and starring Jacqueline Ko and featuring Maria Hwa Yeong Jung! Don’t miss this new music video created in honour of Opera Mariposa’s 10th annual Benefit + Awareness event.

Thank you to our 2022 event sponsors

Last year’s Benefit + Awareness event

Thanks to your amazing support, our 2021 annual Benefit + Awareness event raised $10,471.46 for the ME | FM Society of BC – which brought Mariposa’s charity fundraising total to over $100,000 since our company started! Even though our 2021 Benefit + Awareness campaign is over, you can still enjoy some of the content online, including the interview video Opera & Chronic Illness: Let’s chat ME/CFS, the musical video Dies Bildnis, and the studio single The Singer. You can also read coverage of last year’s event from Stir Vancouver, Broadway World, BC Disability and the Vancouver Sun.

YouTube video thumbnail featuring Opera Mariposa co-founders Robin Hahn and Jacqueline Ko, with the words Chronic Illness - let's chat!

Thank you to our 2021 event sponsors

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